Thursday, October 11, 2012

Panel: Protect Patients Who Use Whole Genome Sequencing

Lloyd, Janice. "Panel: Protect Patients Who Use Whole Genome Sequencing." USA Today, October 11, 2012. 

From the article: "A government panel issued a report Thursday calling for consistent policies and laws to protect the privacy of patients who submit to whole genome sequencing and to ensure the data security.

The panel recommends officials create laws at the state and federal level to prevent the data from falling into the hands of insurance companies, employers and others who could use it as a form of discrimination, to ensure patients are told when being tested, and to hold collectors, storers and users of the information accountable for any breaches of data." Read more

See also
Presidential Commission for the Study of Bioethics. "President's Bioethics Commission Releases Report on Genomics and Privacy." U.S. Department of Health and Human Services, October 11, 2012.